Anemia

Online. Unmoderated forums for patients and professionals dealing with myelodysplastic syndromes, a group of bone marrow diseases. Also has referrals to treatment centers.
Write:
Myelodysplastic Syndromes Foundation
P.O. Box 353
Crosswicks, NJ 08515
Voice: 1-800-637-0839 or 609-298-6746
Fax: 609-298-0590
Website: http://www.mds-foundation.org
E-mail: patientliaison@mds-foundation.org
Verified: 10/8/2008

International. Founded 1983. Emotional support and worldwide support groups, free educational materials, information about current research and clinical trials, and financial assistance for persons with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria and other bone marrow failure diseases. Financially supports research.
Write:
Aplastic Anemia and MDS International Foundation, Inc.
P.O. Box 310
Churchton, MD 20733
Voice: 1-800-747-2820
Fax: 410-867-0240
Website: http://www.aamds.org
E-mail: help@aamds.org
Verified: 9/30/2008

National. 12 chapters. Founded 1954. Offers education and networking for families affected by Cooley's anemia (thalassemia). Fund-raising for research. Newsletter, annual seminars, research grants, patient support group, patient services, and chapter development guidelines.
Write:
Cooley's Anemia Foundation
330 Seventh Ave., Suite 900
New York, NY 10001
Voice: 1-800-522-7222
Fax: 212-279-5999
Website: http://www.cooleysanemia.org
E-mail: info@cooleysanemia.org
Verified: 10/8/2008

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